I, Kirsten Bronsveld-Rustenburg (1977) am married to Arjan. Together we have three children (David, Lars and Meike). We live in beautiful Dalarna in Sweden but both me and my husband are from The Netherlands. After high school, I studied English at the teachers training college in Rotterdam. I really enjoyed working at a school for …
“I’m grateful to be here, because I didn’t just survive, …” Today is a day to give thanks for the new chance I’ve been given. I am a survivor. I spent 30 days in hospital! Of those, 17 days in ICU 01. The longest and most painful weeks of my life. Very intense moments …
“However, the nightmare was far from being over.“ Hello, my name is Cláudia Ferreira, I am Portuguese, and on July 21, 2019, my life took a complete turn. After an accident at work, I had to take medication for sore muscles. Pretty soon I got an allergic reaction which started as a supposed conjunctivitis …
“Seeing the world through the eyes of hope is what I’ve learned the most.” My name is Renata Fernandes Rivero, I’m 30 years old, born in Uruguaiana/RS – Brazil. I have a degree in Human Resources Management and Physical Education, and I teach gymnastics and bodybuilding. For almost two years I suffered from …
Maria survived SJS/TEN, here’s her story My name is Maria Creusa Andrade, I am 40 years old, I was born in Brazil in the city of João Pessoa, and I am a teacher of History and Sciences of Religions. What triggered the SJ/NET syndrome and how long ago was it? An anti-inflammatory medication called FOX …
“I remember that the feelings I am having aren’t permanent“ I’m Bethan Rose Paley, I am 22 years old & I live in a village in North Yorkshire, England. I am currently studying to become an actor. If you want to find out more about me or drop me a message, go to my …
Charleen survived SJS/TEN, here’s her story ♡ Tell me a little bit about yourself. My name is Charleen, 36 years old and I live in California (northern Bay Area). I have lived in California all my life and I work in Mental Health. I’,m married, no children, have a Golden Retriever and two cats (who …
Dorsa’s story to recovey A Stevens-Johnson Syndrome Survivor Tell me a little bit about yourself. My name is Dorsa I’m born in Tehran and I’m a psychologist and I’m twenty-three years old What caused SJ/TEN syndrome and how long ago was it? Three months ago because of carbamazepine Which symptoms did you have? …
“I beat the odds. What’s your superpower?” For those who may not know me. I am an advocate for Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis, a listener, supporter, and a survivor. I am Jeri-Ann, now 31 years old, and this is my Fight story, of what many patients may deal with before, during and after …
Always help others and It’s your responsibility to inform people about SJS/TENS. Hi, my name is Amad Mubeen. I am 21 years old. I was born in Karachi, Pakistan. And I still live in Karachi, Pakistan. I am currently studying Bachelors of Engineering in Mechatronics Engineering from PAF KIET. ♡ What caused SJ/TEN syndrome …
